Resources

The main aim and objective of the Action was to establish a European Network to further understand chronic GvHD, through networking and interdisciplinary training.

I am a patient I am a paramedic, or a physician

General Resources

A selection of handbooks associated with the COST action can be downloaded from the list below.

	EBMT Transplant Book for Nurses Downloadable PDF File
	The EBMT Handbook 2019 Downloadable PDF File
	The European Society for Blood and Marrow Transplant (EBMT) Transplant Complications Working Party
	The Centre for International Blood & Marrow Transplant Research (CIBMTR) GvHD working Group
	The Fred Hutchinson Centre information on GvHD
	The Fred Hutchinson Centre information on GvHD for physicians – resources for long term follow up
	The Rare Disases Clinical Reseach Network (RDCRN) Chronic Graft versus Host Disease Consortium
	German-Austrian-Swiss Consortium Powerpoint Presentation File

Existing GvHD tools

	The European Society for Blood and Marrow Transplant (EBMT) Educational eGvHD App

NIH 2020 Chronic GVHD Consensus Conference

	2020 Chronic GVHD Consensus Conference
	2020 National Cancer Institute (NCI) GVHD Patient Advocacy Summit

Existing online atlas/resources on GvHD for professionals

	Dermatology Net New Zealand (DermNet NZ) resource for skin disease information
	The American Society for Blood and Marrow Transplantation (ASBMT) National Institute for Health Chronic GvHD Consensus Project
	The Fred Hutchinson Centre Video on Comprehensive Chronic GvHD assessments
	The Rare Diseases Clinical Research Network (RDCRN) training workshop: Evaluating Therapeutic Response in Chronic GVHD

Existing definition lists

	The Centre for International Blood & Marrow Transplant Research (CIBMTR) Reference document for Transplant Essential Data (TED) Forms
	The Blood and Marrow Transplant Clinical Trials Network (BMT CTN) Definitions

Patient resources websites

	Information for stem cell transplantation/CAR-T patients and their caregivers on the impact that COVID-19 could have on their medical care
	Rehabilitation Association for Hematopoeitic stem cell transplant (RAHSCT)
	Meredith Cowden Foundation
	Blood and Marrow Transplant Information Network - GvHD
	MacMillan Cancer Support information on GvHD
	Training Video (in French)
	Video: Introduction to Graft-versus-Host Disease
	Video: Chronic Graft-versus-Host Disease of the Skin and Connective Tissue
	Video: Your Eyes and Chronic Graft-versus-Host Disease
	Video: Your Mouth and Chronic Graft-versus-Host Disease
	Video: Chronic Graft-versus-Host Disease of the Gastrointestinal Tract and Liver
	Chris's Cancer Community
	e-Patient Dave
	Living with Chronic Illness, Living with Graft-versus-Host Disease
	Your Skin and Graft versus Host Disease
	Your Eyes and Chronic GVHD
	Your Mouth and Chronic GVHD
	GVHD of the GI Tract and Liver
	Genital Graft-versus-Host Disease
	You Lungs and Chronic GVHD
	Managing Fatigue
	Managing Pain
	Using Technology and Other Strategies to Make Living with GVHD More Manageable
	Caring for a Loved One with GVHD
	Riding the Emotional Roller Coaster for GVHD
	Improve Your Sleep!
	Ask the GVHD Experts
	Introduction to Graft-versus-Host Disease (GVHD)

Collaborating Biobanks

	Cryostem

Patient Testimonials

	Confirmed graft vs host disease Watch video
	The Naked Truth - GVHD of my Skin Watch video
	Patient Insight - Acute GVHD After Transplant Watch video

cGVHD Eurograft PRO GVHD tool box

	Questionnaire on patient reported outcome measures
	Systematic Review of Patient-Reported Outcome Measures in Graft-versus-Host Disease

Resources

The main aim and objective of the Action was to establish a European Network to further understand chronic GvHD, through networking and interdisciplinary training.

General Resources

Existing GvHD tools

NIH 2020 Chronic GVHD Consensus Conference

Existing online atlas/resources on GvHD for professionals

Existing definition lists

Patient resources websites

Collaborating Biobanks

Patient Testimonials

cGVHD Eurograft PRO GVHD tool box

See Also

Are you interested
in taking part?

Do you have a question?

Resources

The main aim and objective of the Action was to establish a European Network to further understand chronic GvHD, through networking and interdisciplinary training.

General Resources

Existing GvHD tools

NIH 2020 Chronic GVHD Consensus Conference

Existing online atlas/resources on GvHD for professionals

Existing definition lists

Patient resources websites

Collaborating Biobanks

Patient Testimonials

cGVHD Eurograft PRO GVHD tool box

See Also

Are you interested in taking part?

Do you have a question?

Are you interested
in taking part?