This Action brought together Chronic GvHD (cGvHD) researchers across Europe for the first time, creating a network of cross-disciplinary experts in the field.
Working Group 2
Other working groups
The development of an epidemiological platform on cGvHD within EUROGRAFT is a novel approach tounderstanding the disease incidence and associated comorbidities. Results of the analysis will enablea deeper understanding of the incidence of the disease and enable additional data to be included in current European wide databases for use in future clinical trials.
Socioeconomics/Quality of life
CGvHD is a long term complex disease which has several co-morbidities and as such impacts on the quality of life of patients. By studying the societal impact of the disease via documented quality of life assessments, including reduced working days due to hospital stays, EUROGRAFT will allow an improved assessment of the burden on society of cGvHD at both the individual and European level.
The NIH consensus criteria needs to be implemented uniformly if diagnosis and treatment of
cGVHD is to be optimized. The aim of this Working Group will be to aid in both the understanding and
implementation of the NIH Consensus via Training Schools and workshops.