Resources for Patient
The main aim and objective of the Action were to establish a European Network to further understand chronic GvHD and improve Patients Care.
You are a patient, welcome !
Find here resources, tools, videos to care of your own and of yourloved-ones.
General resources
A selection of files and video to help education and empowerment.
|
Empowerment begins with education. |
|
|
The less to know. cGVHD in a nutshell |
|
|
Discussion guide for patients |
|
|
Video (in English) |
|
|
Video (in French) |
|
|
Video (in English) |
|
|
Video (in English) |
|
|
Video (in English) |
|
|
Video (in English) |
|
|
Living with Chronic Illness, Living with Graft-versus-Host Disease Video (in English) |
|
|
Video (in English) |
|
|
Why are clinical trials so importants for cGVHD patients ? |
COST Action resources
Find here COST Action production produced with and for patients.
|
Patient-reported outcomes in cGVHD A patient centered study of cGVHD outcomes. A COST Action original publication ! |
|
|
Survivorship after bone marrow transplantation in Germany A qualitative analysis of Experiences and Needs of bone marrow transplantation survivors in Germany. |
